Tuesday, December 8, 2009

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Best Days of My Life
Posted December 7, 2009

Last week was quite a long week for Jordyn. She was admitted back into the hospital for a fever, last Monday, which turned into a deep soft tissue infection. Because the infection was near her Pic line site (infusion access) the docs decided that the best thing along with yet more antibiotics would be to remove the line, wait a couple days, and have another line placed into the opposite arm.

Last night we were able to come back home which was great. This morning her home health nurse came to draw some labs which landed us back into the Jimmy Fund Clinic at Dana Farber for a platelet transfusion which lead to another long day for Jordyn. We arrived back home this evening a bit past 7pm and at the same time sissy Taylor was arriving back home from basketball with Mr. Fosher. Jordyn was thrilled to be able to see him again and say a quick hello. She loves him along with his great thin mint candies. For those of you who don't know Mr Fosher...he was Jordyn's principal last year who has an unlimited supply of thin mints in his office. Now what kid wouldn't want to be sent to this principals office??? ha ha

Needless to say coming home late runs me behind all of Jordyn's meds and iv hook-ups which will land me in bed late. I sit here and watch my princess Jordyn sleep. I think of all our long days of laughter, of pain, of meds, of hospital stays, of running to the clinics for blood and platelets, her new NG feeding tube she also had placed while in the hospital, etc, etc. I am not writing this for pitty....far from pitty is what I would want.....I am writing it in a sense of no matter how crazy our lives seem from the outside.....I sit and cherish it....I sit and think tonight of how lucky I am to have such a life with my family and my children....I sit and think to myself.....These are the Best Days of My Life!

Jordyn always says when she is having a rough day...Don't worry, tomorrow is a better day! Now how could I not sit here and be able to cuddle her and really say....definately... the best days of my life!

Thursday, December 3, 2009

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Day of Giving Thanks
Posted Nov 26, 2009 9:06pm

I am thankful for everyday I have with both of my children. I am thankful for being the chosen mother to have a special child that has touched so many hearts in ways only she can. I am thankful for todays moments and yesterday's memories. I am thankful for friends, family, neighbors, nurses, doctors, and people we may not have met but have touched our hearts and followed Jordyn's Journey! So many times I am lost for words to say thank you. I could never possibly write thank you notes for all the support that has been given to us and continues to be given to us. But knowing that today is a special day to give thanks......how could I possibly go through the day without saying.....THANK YOU FROM THE BOTTOM OF OUR HEARTS!!!
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Priceless.......Home Sweet Home
Posted Nov 20, 2009 5:29pm
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As you can imagine Jordyn is beyond joyed to be home sweet home! The reunion with her cats was the sweetest thing ever to see. But what was the most priceless was Jordyn's welcome home from ALL OF YOU!!! Wow....we all have no words to describe the feeling coming into the driveway! It was everything Jordyn wanted......THANK YOU!! You all truly treated her like a princess from the moment she stepped out of her hospital room and the goodbye from the 6th north floor at Childrens Hospital to the drive home to the Welcome Home Jordyn crowd. WOW!!
Since being home, Jordyn's spirit has been incredibly happy, happy and happy! She is laughing, playing, singing, and dancing! To see her just brings us all to tears that amidst all of the news from the doctors she is enjoying life just like we all wanted her to. Living life to the fullest is what she is doing and it is all we want her to do. Amidst the daily nurse visits at home, clinic visits for blood/platelet transufusions, medicines and IV hook-ups at home.....There is much to be thankful for and much that cancer CAN NOT DO TO US!!

What Cancer Cannot Do:

Cannot cripple love
Cannot shatter hope
Cannot corrode faith
Cannot destroy peace
Cannot kill friendship
Cannot suppress memories
Cannot silence courage
Cannot invade the soul
Cannot steal eternal life
Cannot conquer the spirit
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